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@joyceclaudy So glad this post was on point for you - I know how helpful it has been for me to read other peoples experiences so I am really happy to pay it forward in some small way. We absolutely have to be our own advocates with medical professionals, especially with unusual issues. I am...

@efraim7praise I will definitely update again in future! Thankyou for such an uplifting, kind comment - I found myself feeling so warm & supported when I read this. What a wonderful gift to lift others up in this way. Walking the line of balancing our limitations whilst still moving forward is...

@napolihawk1 I am so sorry to hear about your subluxing fingers, that sounds so incredibly frustrating & painful. I am so familiar with that sense of dread, it comes to me in waves at times. Fear of the future is normal and particularly relevant when you have a chronic health issue that can...

@napolihawk1 And thankyou for such kind words and the encouragement - I am so glad it has been helpful. It is so good knowing we aren’t alone with these issues. Always happy to talk. :)

@michaelwb67 Sorry to hear you also suffer with the daily pain and injuries. It truly sucks. On the other hand I am so glad to find someone else who ‘gets’ it. You are particularly special since you also will have some understanding of how the spectrum side of things can tie in with it (although...

@totta Thankyou! This is exactly what I need to hear. Consistency and moderation is something I’m very much still working on! There’s so much uncertainty with this illness. Glad to hear that this is working for a fellow zebra - nice to know I’m hopefully on the right path. Gentle hugs!

@dawn16 Thankyou truly! It can really do a number on your psyche. My perception of myself can be all over the place due to what I have been gradually realising over the years is dysmorphia - one of the reasons for the extensive documentation of things in various forms. It definitely wouldn’t...

@cyriacb No worries - apologies if there’s too much fluff there - I’m tired and just sort of brain-dumped the info! Hopefully something there is useful. The main takeaway for me was I didn’t need to be anywhere near as organised/prepared as I thought, and that the calculators were REALLY wrong...

@cyriacb Hi - and Thankyou! I am certainly no expert & I did things in a fairly organic/experimental way. To give you some context : I knew from previous experience of restricting to 1200-1500 that I would lose very quickly, then quickly regain after only two months or so when I inevitably...

@iamgr8tful Oh wow - I’ve read about Chiari and it sounds awful. So sorry to hear about shitty doctors - it seems unfortunately common with these sorts of chronic issues & I think we need something of a revolution in healthcare personally. It takes so much to put yourself through the process of...

@pebcak I’m glad it was interesting! Thankyou for the kind words, although I think you are being too kind about it being concise! Haha! I use have a desire to convey as much info as possible because I never know which bit someone might find handy to them personally. All the best!

@suzietk Ah! No I haven’t had it tested properly (the doctor took my blood pressure sitting and standing last week, but that time it stayed stable) ...although I’m fairly sure I have it due to having times where I lose my vision completely for 15 seconds, get dizzy and sometimes crumple to the...

I mentioned in a comment previously that I would post some progress photos to demonstrate what a small recomp looked like for me since starting strength training for the first time ever 4 months ago, under the supervision of an amazingly thoughtful, intelligent, encouraging and understanding...